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      <image:title>Events - Cruise for the Cure - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <loc>https://www.degosdisease.org/events/rare-disease-day-awareness-fundraiser-event</loc>
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    <lastmod>2026-02-26</lastmod>
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    <lastmod>2026-02-11</lastmod>
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      <image:title>Events - Winter’s End Degos Disease Fundraiser - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2025-11-15</lastmod>
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      <image:title>Events - Breaking the Chains Magnolia Harmony Holiday Quilt Raffle - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <image:image>
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      <image:title>Events - Breaking the Chains Magnolia Harmony Holiday Quilt Raffle - Stitching Together Hope: Magnolia Harmony Quilt Raffle for Research &amp; Awareness</image:title>
      <image:caption>The Steffens Scleroderma and Degos Disease Foundations are excited to “Magnolia Harmony” 3-Piece Quilted Bedding Set—a queen-size blend of comfort, beauty, and quality. But this raffle is about so much more than cozy bedding. Founded in memory of Ann Elizabeth Steffens and strengthened through the legacy of Ernie DuPont our work is dedicated to advancing research, education, and awareness for rare conditions like scleroderma and Degos disease—both of which affect small blood vessels, cause fibrosis, and can deeply impact quality of life.</image:caption>
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    <loc>https://www.degosdisease.org/events/holiday-quilt-raffle-winter-poinsettia-magic</loc>
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    <lastmod>2025-10-31</lastmod>
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      <image:title>Events - Breaking the Chains Winter Poinsettia Magic Holiday Quilt Raffle - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Events - Breaking the Chains Winter Poinsettia Magic Holiday Quilt Raffle - Stitching Together Hope: Winter Poinsettia Magic Quilt Raffle for Research &amp; Awareness</image:title>
      <image:caption>The Steffens Scleroderma and Degos Disease Foundations are excited to “Winter Poinsettia Magic” 3-Piece Quilted Bedding Set—a queen-size blend of comfort, beauty, and quality. But this raffle is about so much more than cozy bedding. Founded in memory of Ann Elizabeth Steffens and strengthened through the legacy of Ernie DuPont our work is dedicated to advancing research, education, and awareness for rare conditions like scleroderma and Degos disease—both of which affect small blood vessels, cause fibrosis, and can deeply impact quality of life.</image:caption>
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    <lastmod>2025-10-17</lastmod>
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      <image:title>Events - Breaking the Chains Nature Embrace Holiday Quilt Raffle - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Events - Breaking the Chains Nature Embrace Holiday Quilt Raffle - Stitching Together Hope: Nature Embrace Quilt Raffle for Research &amp; Awareness</image:title>
      <image:caption>The Steffens Scleroderma and Degos Disease Foundations are excited to “Nature Embrace” 3-Piece Quilted Bedding Set—a queen-size blend of comfort, beauty, and quality. But this raffle is about so much more than cozy bedding. Founded in memory of Ann Elizabeth Steffens and strengthened through the legacy of Ernie DuPont our work is dedicated to advancing research, education, and awareness for rare conditions like scleroderma and Degos disease—both of which affect small blood vessels, cause fibrosis, and can deeply impact quality of life.</image:caption>
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    <lastmod>2025-09-25</lastmod>
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      <image:title>Events - Breaking the Chains Purple Rose Holiday Quilt Raffle - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Events - Breaking the Chains Purple Rose Holiday Quilt Raffle - Stitching Together Hope: Purple Rose Quilt Raffle for Research &amp; Awareness</image:title>
      <image:caption>The Steffens Scleroderma and Degos Disease Foundations are excited to “Purple Rose” 3-Piece Quilted Bedding Set—a queen-size blend of comfort, beauty, and quality. But this raffle is about so much more than cozy bedding. Founded in memory of Ann Elizabeth Steffens and strengthened through the legacy of Ernie DuPont our work is dedicated to advancing research, education, and awareness for rare conditions like scleroderma and Degos disease—both of which affect small blood vessels, cause fibrosis, and can deeply impact quality of life.</image:caption>
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    <lastmod>2025-06-28</lastmod>
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      <image:title>Events - Cruise for the Cure 2025 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2024-09-03</lastmod>
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      <image:title>Events - American College of Rheumatology Convergence 2024 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2024-09-03</lastmod>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2024-09-03</lastmod>
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      <image:title>Events - Rare Disease Day - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2025-06-28</lastmod>
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      <image:title>Events - Cruise for the Cure - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
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    <loc>https://www.degosdisease.org/events/fall-festival</loc>
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    <lastmod>2024-09-03</lastmod>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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